Sourozenci onkologicky nemocných dětí: subjektivně vnímané změny v životě a kvalita jejich života 6 měsíců po stanovení diagnózy nemocnému sourozenci
| Title in English | Siblings of children with cancer: Subjectively percived changes in their lives and quality of life six months after diagnosis |
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| Authors | |
| Year of publication | 2013 |
| Type | Article in Periodical |
| Magazine / Source | Ceskoslovenska Psychologie/Czechoslovak Psychology |
| MU Faculty or unit | |
| Citation | |
| Field | Oncology and hematology |
| Keywords | oncology disease; siblings; quality of life |
| Attached files | |
| Description | Objectives. The aim of the study was to explore siblings' knowledge about cancer, perceived changes in relationship with parents, problem behavior and quality of life of siblings of pediatric oncology patients. Subjects and settings. Subjects were 34 siblings age 7 to 16 (average aged 11.3 years, 19 girls) three to nine months after diagnosis (average time from diagnoses 6,6 months). Hypothesis. We expected lower quality of life and higher problem behavior in study sample in comparison to healthy population. Instruments and statistical analyses. Sibling Perception Questionnaire was used for assessing information about disease and relationship with parents, Child Behavior Checklist to assess problem behavior, and Minneapolis-Manchester Quality of Life Instrument to evaluate quality of life. Differences between groups were analyzed using Kruskal-Wallis and Mann-Whitney tests. Results. The results showed that siblings are relatively well informed about the disease and treatment of sick child and that they are not experiencing behavioral problems. However, younger siblings reported the wish to spend more time with their parents and adolescents have lower life satisfaction than comparison groups. Results also showed presence of myths about the disease. Study limitations. The main limitation of the study is effect of self-selection of participants as only 31% addressed families entered the research. |